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Myeloproliferative neoplasms (MPNs) Patient Events

MPN Symptom Tracking

Learn how tracking MPN symptoms like fatigue, itching, and brain fog can improve care. Real insights from patients with PV, MF, and ET.

MPN Symptom Tracker

Take Charge of Your MPN: Tracking Symptoms & Advocating for Better Care

Watch the Program Replay On Demand

Living with an MPN (myeloproliferative neoplasm) brings challenges that aren’t always visible—but tracking your symptoms can make a powerful difference.

 

In this free patient-led discussion, MPN advocates Ruth Fein Revell, Nick Napolitano, and Demetria open up about what it means to live proactively with an MPN—whether it’s ET, PV, or MF.

They share honest insights on:

  • How fatigue, brain fog, itching, and other symptoms show up in real life

  • Why tracking those symptoms can shape better care and decisions

  • The emotional weight of living with a chronic cancer—and how to cope

  • How care partners can support advocacy and communication

  • The role of clinical trials in expanding future treatment options

MPN Symptom Tracker webinar patient panel
The Leukemia & Lymphoma Society is here for you with information about clinical trials, resources, and support.

Thank you to The Leukemia & Lymphoma Society for their partnership. The Leukemia & Lymphoma Society is here for you with information about clinical trials, resources, and dedicated support through their Information Specialists.

MPN Research Foundation

From groundbreaking studies to insightful patient stories, MPN Research Foundation is at the forefront of making real change for those directly affected by essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF).

Register for this informative webinar replay then invite a friend or care partner.

Whether you’re newly diagnosed or have been living with an MPN for years, this conversation is for you.

 

Take Charge of Your MPN: Tracking Symptoms & Advocating for Better Care
Hosted by The Patient Story Team
In this free patient-led discussion, MPN advocates Ruth, Nick, and Demetria open up about what it means to live proactively with ET, PV, or MF.
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Karyopharm Therapeutics


Thank you to Incyte and Karyopharm Therapeutics for supporting our patient education program. The Patient Story retains full editorial control over all content.