Living Strong with MPN: Navigating Everything from Treatment to Trials with Resilience

Living Strong with MPN - Replay Coming

Navigating Everything from Treatments to Clinical Trials with Resilience

Date
Held on Nov 14th, 2024

Replay coming soon – sign up to get alerted when it releases.

This program was a live in-person program in St. Louis, MO.  

This program is for those affected by Polycythemia vera (PV), Essential thrombocythemia (ET), and myelofibrosis.

MPN Experts from Siteman Cancer Center

Dr. Stephen Oh is Associate Professor of Medicine and Co-Chief of the Division of Hematology and Dr. Amy Zhou is Associate Professor of Medicine in the Division of Hematology. They are both at Washington University School of Medicine. This program covered the following topics:

  • Gain practical tools for monitoring symptoms, managing side effects, and improving your day-to-day life.
  • Discover the latest treatment breakthroughs, including clinical trials, and what they mean for your future.
  • Hear inspiring stories from others living with MPN and receive expert advice on emotional well-being and self-care.
Stephen Oh, MD, PhD

Associate Professor of Medicine
Co-Chief of the Division of Hematology

Washington University School of Medicine

Dr. Amy Zhou
Amy W. Zhou, MD

Associate Professor of Medicine
Division of Hematology

Washington University School of Medicine

Imerman Angels
MPNRF

Thank you to The Leukemia & Lymphoma Society, Imerman Angels, and the MPN Research Foundation for their partnerships. We are fortunate to work with such amazing partners that are here for you with information about clinical trials, resources, and support.

“The research is happening so quickly. We have very, very few treatments that are approved. The only way we’re going to get better drugs and better treatments is through clinical trials.”
Ruth Fein Revell
Ruth Fein Revell
MPN Patient Advocate
This program is more than just an information session—it's a vital resource for those affected by myeloproliferative neoplasms (MPNs). Hear from leading experts and patients, and uncover the latest advancements in treatments, including clinical trials and targeted therapies, to help you or your loved one navigate this journey with confidence and hope.
GSK
Karyopharm Therapeutics
Novartis
Sobi

Thank you to GSK, Karyopharm, Novartis, and Sobi for their support of our patient education program! The Patient Story retains full editorial control over all content.

Andrea S. feature profile

Andrea’s Myelofibrosis Story

Andrea S., Myelofibrosis Symptoms: Fatigue, anemia Treatments: Targeted therapy (JAK inhibitor), blood transfusions, allogeneic stem cell...

Holly’s Myelofibrosis Story

Holly S., Myelofibrosis Symptoms: Severe fatigue, throbbing pain in left calf, significant weight loss, itching and...
Ben H.

Ben’s Myelofibrosis with CALR Mutation Story

Ben H., Myelofibrosis Symptoms: None; caught at a routine blood testTreatments: Hydroxyurea & aspirin, ruxolitinib...
Doug A. feature profile

Doug’s Myelofibrosis Story

Doug A., Myelofibrosis Symptom: FatigueTreatments: ruxolitinib, selinexor (clinical trial)...
Kristin D.

Kristin’s Myelofibrosis Story

Kristin D., Myelofibrosis Symptoms: None; caught at routine blood workTreatment: Stem cell transplant...
Joseph C. feature profile

Joseph’s Myelofibrosis Story

Joseph C., Myelofibrosis Symptoms: None; caught at routine blood workTreatment: Clinical trial: VONJO (pacritinib)...