Lung Cancer Patient Stories
Unsure of what to do after a lung cancer diagnosis? Explore in-depth lung cancer patient stories from our community members who share everything from first symptoms to navigating life with cancer.
Also hear from lung cancer experts, like an oncologist who specializes specifically in all lung cancer cases and talk about developments in targeted therapies that have helped decrease the number of NSCLC deaths in recent years. There is a lot of development in understanding biomarkers that have led to new treatment options.
The White Ribbon Project Series
The White Ribbon Project is a grassroots organization is powered by lung cancer patients, caregivers, healthcare providers, researchers – anyone who wants to help raise lung cancer awareness. The group creates and distributes wooden white ribbons as a symbol of its powerful movement to shift the narrative on lung cancer and break stigmas.
Lauren C.
Symptoms: Chronic wheezing, difficulty breathing, recurrent pneumonia and bronchitis
Treatment: Video-assisted thoracoscopic surgery (VATS)
Dr. Michael Gieske
Background: Doctor fighting for early lung cancer screening story Focus: Encouraging more screening for lung cancer
Heidi Nafman Onda
Background: Diagnosed with stage 3 lung cancer, started The White Ribbon Project to push awareness of anyone with lungs can get lung cancer
Focus: Encouraging lung cancer story sharing, inclusion of everyone in the community
Dave Bjork
Background: Underwent stage 1 lung cancer surgery, in remission for decades, hosts own cancer researcher podcast
Focus: Encouraging lung cancer story sharing, passionate advocate for early screening and biomarker testing
Lung Cancer Stories
Non-Small Cell Lung Cancer Stories
Non-small cell lung cancer makes up about 85- to 95-percent of all lung cancer cases. Explore non-small cell lung cancer stories below.
“Under the umbrella of non-small cell lung cancer, there are now sub-categories based on molecular changes,” Dr. Camidge explains. “That means it’s not just based on what it looks like down the microscope, but if you suck DNA out of the cancer, you can find different mutations that act differently. “
Jill F., Non-Small Cell Lung Cancer with EGFR Exon 19 Deletion, Stage 1A
Initial Symptoms: Nodule found during periodic scan
Treatment: Surgery, targeted therapy, radiation
Ashley S., Lung Cancer, Stage 4
Initial Symptoms: Cough that lasted for months, sharp pain in right abdomen and shoulder area
Treatment: Targeted therapy
Natalie B., Lung Cancer, Stage 4
Symptoms: Persistent cough, fatigue
Treatment: Chemotherapy (Carboplatin, Alimta); Immunotherapy (Keytruda); Clinical trials; Radiation (palliative)
Samantha M., Non-Small Cell Lung Cancer, HER2-Mutant, Stage 4 (Metastatic)
Symptoms: Persistent cough, chest pressure, fatigue, weight loss
Treatments: Chemotherapy, immunotherapy
Ashley V., Non-small cell Lung Cancer, Stage 4
Symptoms: Trouble swallowing, shortness of breath, fatigue, loss of appetite, chest pain, swelling in her body
Treatment:Surgery (removal of lung), chemotherapy, immunotherapy, radiation
Small Cell Lung Cancer Stories
Small cell lung cancer (SCLC) is only about 12-percent of lung cancer cases according to Dr. Camidge. Explore small cell lung cancer stories below.
Montessa L., Small Cell Lung Cancer
Symptoms: Chest pain, lingering cough
Treatments: Chemotherapy (cisplatin switched to carboplatin, etoposide), chest radiation, brain radiation (prophylactic)
...
EGFR Lung Cancer Stories
Jill F., Non-Small Cell Lung Cancer with EGFR Exon 19 Deletion, Stage 1A
Initial Symptoms: Nodule found during periodic scan
Treatment: Surgery, targeted therapy, radiation
Filipe P., Non-Small Cell, EGFR 19del, Stage 4 (Metastatic)
Symptom: Headache
Treatments: Surgery (to remove brain metastasis), cryoablation (to remove kidney metastasis), targeted therapy, SBRT, bispecific antibody
Leah P., Non-Small Cell, EGFR 19del, Stage 4 (Metastatic)
Symptoms: Persistent dry cough, shortness of breath, heaviness in the chest, coughing up blood, weight loss, right rib pain, right shoulder pain
Treatments: Tyrosine kinase inhibitor (osimertinib), Xgeva (denosumab), radiation (SBRT)
Tiffany J., Non-Small Cell, EGFR+, Stage 4 (Metastatic)
Symptoms: Pain in right side, breathlessness
Treatment: Clinical trial (osimertinib & ramucirumab)
Ashley R., Non-Small Cell, EGFR+ T790M, Stage 4 (Metastatic)
Symptom: Tiny nodules in lungs
Treatment: Tyrosine kinase inhibitor (osimertinib)
Lung Cancer Oncologist
Lung cancer oncologist, Dr. D. Ross Camidge, is an expert in small cell lung cancer and the latest treatments.
In this interview, he details immunotherapy and treatment options, including for EGFR (Osimertinib), ALK (Alectinib), ROS1 (Crizotinib), BRAF (Dabrafenib & Trametinib), and NTRK.
Dr. D. Ross Camidge, M.D., Ph.D.
Role: Thoracic oncologist, Director of the Thoracic Oncology Clinical Research Programs
Focus: Lung cancer, small cell (Immunotherapy), EGFR (Osimertinib), ALK (Alectinib), ROS1 (Crizotinib), BRAF (Dabrafenib & Trametinib), NTRK
Provider: Univ. of Colorado
The Latest in Lung Cancer Treatments: Is a Clinical Trial Right for Me?
Leading experts Estelamari Rodriguez, MD, MPH, from the University of Miami Sylvester Comprehensive Cancer Center, Jason Porter, MD, from West Cancer Center & Research Institute, and Terri Conneran, founder of KRAS Kickers, discuss the latest in lung cancer treatments and ongoing clinical trials.
Lung Cancer Background
Lung cancer is the third most common cancer in the United States and includes two main types: non-small cell lung cancer (NSCLC), which make up about 75- to 75-percent of lung cancer cases, and small cell lung cancer (SCLC), at about 12- to 13-percent.
Lung Cancer Treatments
There are new treatment breakthroughs happening for different lung cancer types.
The 12-percent (small cell) is desperately in need of a breakthrough. They’ve been using the same chemotherapy for about 30 years. The first real breakthrough happened in October 2018 when they started adding immunotherapy.
Dr. D. Ross Camidge
Smoking and Stigma
It’s important to note that people with a wide range of smoking backgrounds – no history, some history, history of heavy-smoking, can all develop lung cancer.
More recently, there have been a growing number of campaigns to raise awareness about lung cancer and how anyone can be impacted. One popular message is, “If you have lungs, you can get lung cancer.”
“It becomes incredibly frustrating as an oncologist when people assume all my patients are smokers. My youngest patient was 14 when she was diagnosed, and people went, ‘Was she a smoker?’ Of course she wasn’t a smoker,” shares Dr. Ross Camidge, a lung cancer oncologist.
That prejudice is a way of removing empathy. We should educate people that that’s actually a very rude question to ask.