Hodgkin’s Lymphoma Stories

Hodgkin Lymphoma

What is Hodgkin’s lymphoma? Also known as Hodgkin’s Disease, Hodgkin’s lymphoma is a disease in which malignant (cancer) cells form in the lymph system. It may then spread to the liver, lungs, or bone marrow.

Some of the most common first symptoms of Hodgkin’s lymphoma can include:

  • Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area
  • Fever and chills
  • Night sweats
  • Weight loss
  • Loss of appetite
  • Itchy skin

Hodgkin Lymphoma 101

Learn more about Hodgkin lymphoma. In this guide, we will explore the symptoms, signs, screenings, stages, and treatment options for Hodgkin lymphoma. Whether you want to learn about early warning signs or treatments and prognosis, we’ve got you covered.


Hodgkin Lymphoma Patient Stories

Our community members dive deeper into their cancer stories than any others, sharing their first symptoms, different treatment paths and side effects, and reflections on the entire experience. Choose stories based on subtypes below.

Jessica H. feature profile

Jessica H., Hodgkin’s Lymphoma, Stage 2



Symptom: Recurring red lump on the leg (painful, swollen, hot to touch)

Treatment: Chemotherapy
Rylie G. feature profile

Riley G., Hodgkin’s, Stage 4



Symptoms: • Severe back pain, night sweats, difficulty breathing after alcohol consumption, low energy, intense itching

Treatment: Chemotherapy (ABVD)

Amanda P. feature profile

Amanda P., Hodgkin’s, Stage 4



Symptoms: Intense itching (no rash), bruising from scratching, fever, swollen lymph node near the hip, severe fatigue, back pain, pallor
Treatments: Chemotherapy (A+AVD), Neulasta


Brescia D.



Symptoms: Swelling in the side of her neck

Treatment: Chemotherapy: 6 rounds of ABVD

Stepheni shares her Hodgkin lymphoma cancer story
Stephenie P., Classical Hodgkin's Lymphoma Diagnosis: Classical Hodgkin's Lymphoma Symptoms: Bumps along the neck, Night sweats, 25-pound weight lossTreatment: Chemo, ABVD, ICE, Brentuximab, Radiation, Stem Cell Transplants
Danielle shares her stage 1 Hodgkin lymphoma story
Danielle D., Classical Hodgkin's Lymphoma, Stage 1 Diagnosis: Stage 1 Classical Hodgkin's Lymphoma Symptoms: NoneTreatment: Chemo, ABVD, Immunotherapy, Nivolumab, Brentuximab, Bone Marrow Transplant

Hodgkin Lymphoma Resources

Patient Self-Advocacy: A Conversation on Speaking Up for Ourselves Four incredible Hodgkin lymphoma patients/survivors share how they were able to advocate for themselves throughout their cancer care.

The Latest in Hodgkin Lymphoma with Dr. Matthew Matasar: Dr. Matthew Matasar with Rutgers Cancer Institute discusses emerging and most-promising therapy options for relapsed/refractory Hodgkin lymphoma patients and those newly-diagnosed.

Looking for non-Hodgkin’s lymphoma stories and resources? Visit the non-Hodgkin’s lymphoma stories page.

Hodgkin Lymphoma Oncologists & Experts

Read interviews from medical experts who specialize in blood cancers including Hodgkin’s lymphoma.

Hodgkin Lymphoma Side Effects and Holistic Approach
Optimizing Quality of Life: Reducing Toxicity in Hodgkin Lymphoma Care Dr. Andy Evens from Rutgers Cancer...
Hodgkin Lymphoma ASH 2023 feature profile
The Latest in Hodgkin Lymphoma: Treatment Options in 2024 Where is Hodgkin lymphoma headed in 2024?...
Dr. Matthew Matasar at ASH 2023 feature profile
The Latest in Hodgkin Lymphoma Dr. Matthew Matasar, chief of blood disorders at the Rutgers Cancer...
Dr. Matthew Matasar
Matthew Matasar, MD, MS Dr. Matthew Matasar, chief of blood disorders at the Rutgers Cancer Institute...

Navigating Life With Cancer